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LINKS
Velo Cardio Facial Syndrome Educational Foundation Inc
This is the world’s first established and pre-eminent source of information in relation to VCFS. Our President, Steve Russell has been the Regional Director for Australia and the Pacific Rim for the VCFS Educational Foundation since 2004.
The VCFS Centre at the Mater |
The VCFS clinic at Mater has been developed to support children and young people to the age of 18 and their families. The clinic is a public/private partnership between the Mater Health Services, and the VCFS Foundation of Queensland, which funds half the operating costs of the clinic. |
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The Velo-Cardio-Facial Syndrome Educational Foundation, Inc. is the world's pre-eminent organization for VCFS information sharing. It was founded in the US, but is now an international organisation. It is comprised of both professional and lay people whose purpose is to educate the public, the scientific community, families of individuals with Velo-Cardio-Facial syndrome, and individuals with Velo-Cardio-Facial syndrome (VCFS) about this common genetic disorder. |
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VCFSNSW - The Velo Cardio Facial Syndrome Foundation of New South Wales. This group, based in Sydney, NSW, is very active, and is the first point of contact for the VCFS community in that State. |
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The Association of Genetic Support of Australasia facilitates support for those affected directly or indirectly by genetic conditions throughout Australasia |
2008 VCFS Faces of Sunshine Ball
Date: Sat 18 October 08
Time: 7pm for 730pm
Venue: Gianni's at Portside
UPCOMING CONFERENCES
16th International Scientific Meeting
Date: 3-5 July 2009
Venue: Congress Center Hotel Rome
More info: www.aidel22.it
> More info
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