Ask Anything WIth Us Frequently Asked Questions
What is The VCFS Platform?
VCFS website is a platform to help and support people who have Velocardiofacial Syndrome. We are a reliable name in Queensland and have helped generate awareness about 22q11.2DS or VCFS. To you are also dealing with a similar problem, then you should explore our website.
Is There Any Registration Fee?
The VCFS platform is free and dedicated to raising awareness about people who want to know more about 22q deletion disorder. Since the syndrome affects so many people in Australia, it is necessary to have a place where information regarding it well put and easy to access.
How Does This Platform Help People with VCFS?
22q11.2DS formerly known as VCFS is a serious health issue and our platform helps by raising awareness about it. We share facts, statistics, and other useful information to be a one-stop guide for VCFS.
Do you Organise Events?
No, we don’t. We are an informative platform that helps educate people, share research and help people with VCFS get the information they need to learn more about the syndrome.
Are Your Contributors Reliable?
Each contributor of our platform is vetted thoroughly before their information is published. We have a team of healthcare professionals and VCFS patients who want to make other aware and educate about 22q disorder and ensure people with VCFS that they are not alone.
How Can I Become a Contributor?
To maintain our platform’s reliability, we only choose contributors ourselves and reach out to prominent people knowledge and experience of treating the syndrome. However, if you think you can meet our eligibility criteria, send us an email with your qualifications, credentials and documents for verification. If we find you to a valuable contributor, then we will contact you do the same.
How Does this Syndrome Affect your Body?
Velocardiofacial Syndrome affects the body in more than many ways. Most common issues people with VCFS face are heart defects. What’s more, 22q negatively impacts the immune system that helps to fight off the infections and the endocrine system that supports your normal growth as well as development. The Syndrome also affects the Neurological system that controls learning, hearing, speech and behaviour.
What is the main cause of Velocardiofacial Syndrome?
Although the exact cause of the velocardiofacial syndrome is still unknown, health experts have found a chromosomal defect in people who have velocardiofacial syndrome. Studies have found that the majority of the kids with this syndrome are missing a minor piece of chromosome 22. This “deletion” is situated at an area of the chromosome that is called 22q11.2.
When people with Velocardiofacial Syndrome need Surgery?
A child with such syndrome often requires one or more surgeries. They need surgery to repair heart defects, repair of cleft palate, surgery reconstructs of the ears or the lower jaw. Our Volunteers coordinate with carious medical institutes in Queensland, so the people can get proper treatment at the earliest.
How To Connect with VCFS?
If for queries or any other information you want to get in touch, drop an email or call. Our team is available Monday to Friday 10 am to 5 pm. We will do our best to get in touch with you. However, if we don’t respond immediately, we will send an email and reach out within 48-72 hours.