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What's new at VCFS Foundation of Queensland.
Rare Disease Day: 28 February 2010
We are planning our information picnic and booth to take part in the International Rare Disease Day on 28 February. Our Foundation will set up a booth to inform passers-by about this unknown-but-not-rare disorder. Why can it still be unheard of when the medical community knows that it is not rare?
Donations received on this day will help go to buying new baby scales for our VCFS Clinic. As you know, a baby's ability to put on weight can be a problem for those with VCFS. Because our clinic is growing rapidly, we have need for new scales.
Be sure to check this space to learn where our booth will be set up.
Splish Splash VCFS Queensland Bash Pool Party: 7 March 2010
This year is full of changes. Instead of one family day per year, we will host three to four. This should allow more people to have a chance to meet during the year. Our first party is a pool party. Please email Katy for specifics (e.g. what to bring, where it is).
International Rare Disease Day
28 February 2010
Family Day pool party
7 March 2010
12 to 4
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