Common Myths About Velocardiofacial Syndrome
Many children and adults throughout the world suffer from Velocardiofacial Syndrome (VCFS), sometimes also referred to as 22q11.2 deletion syndrome, yet little is known about it among the general public. People with the illness, may experience fear, stigma and inadequate support, as a result of misconceptions held by members of society. By debunking widespread misconceptions, we may be able to encourage families to seek support from community services like support groups in Queensland and foster acceptance and knowledge among communities as a whole. Myth 1: VCFS Only Affects Physical Appearance It is not just a physical condition, though some people with VCFS may have a few modest facial changes. VCFS can affect several systems in the body like the person's immunity, heart health, speech and learning centres. It is a complex syndrome whose symptoms vary greatly from person to person. Myth 2: All Individuals with VCFS Have the Same Symptoms Every individual with VCFS is unique. Some people may experience mild learning challenges, while others may have more significant speech or developmental delays. Because of this variability, access to personalised medical care and support groups in Queensland, can be especially helpful for families that are trying to navigate through this condition. Myth 3: VCFS Is Rare and Untreatable VCFS is more common than many people will realise, occurring in approximately 1 in 4,000 births. Many features of the condition can be treated with speech therapy, cardiac care, educational support and emotional guidance, even if there isn't a very clear or all encompassing solution at this time. Quality of life can be considerably enhanced with the help of early intervention. Myth 4: Children with VCFS Cannot Lead Independent Lives Many people with VCFS go on to live happy, self sufficient lives. Children can thrive in school, pursue occupations and develop social skills with the correct support and encouragement. Families can learn how to make plans for long term success and independence, by getting in touch with support groups in Queensland. Myth 5: VCFS Only Affects Children Although many people are diagnosed in childhood, VCFS is a lifelong condition. Adults may still need emotional or medical support, particularly when it comes to managing heart related problems, anxiety, or learning disabilities. In adulthood, having constant access to resources and support, from the community is crucial. Myth 6: Families Must Cope with VCFS Alone Among the most damaging myths is this one. Families are not required to go through this process alone. In Queensland, there are many doctors, therapists and support groups that offer crucial emotional support, a forum for sharing experiences, and useful tips for navigating everyday life.
